Big News about Hannah’s Heart

I used to write all the time – on Post It notes at work, on Dunkin Donuts receipts in my car, I’d send myself emails if I didn’t have a pen and paper. There were so many thoughts I wanted to remember ever and feelings that I wanted to release. Lately I haven’t even been able to write a grocery list and it all started after Hannah’s last cardiology appointment. The month we waited for her sedated echo somehow flew by in the most painfully slow way. The days were short and the weeks were long but it was finally 6 am on a Thursday morning and time to leave for the hospital.

The appointment went surprisingly well, all because Hannah is the greatest kid ever. Even though she hadn’t eaten in over 12 hours she was still happy and silly while ninja rolling across the adult-size bed. After we sorted out which sedation medication to use (the doctor let us choose) and Hannah fell asleep (in 3 minutes instead of the typical 20-30 minutes) the echo took place and lasted over an hour. Our cardiologist was on vacation but another one came in to check the images and give us zero information on what she saw. The anesthesiologist and nurse were expecting Hannah to be awake by then but it was at least another 15-20 minutes before she started to open her eyes. Once the nurse finally believed us that Hannah wasn’t going to drink apple juice we were allowed to give her a small bottle before being discharged.

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Our cardiologist called early Tuesday morning to give us her report: accelerated blood flow, moderate blockage of the valve, but no damage to the valve. She felt surgery was not urgent and could be done at our “convenience” but she wanted to prevent Hannah’s case to the cardiothoracic team at the end of the week to see if anyone disagreed. Friday afternoon rolled around and we were given the best news ever…

Hannah doesn’t need surgery yet or possibly ever.

She’ll be monitored every 6 months to see if the scar tissue continues to grow or if the accelerated blood flow damages the valve. Hannah has no idea why she was hugged so tightly that day but the rest of us immediately felt relief from the anxiety.

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